- Itchiness: Minimal
- Flaking : Moderate
- Burning skin: Moderate
- Redness: Head to waist due to Herpeticum
- Soreness : Face, body due to Herpeticum
- Weeping skin : Calves, feet, fingers minimal
- Mood : Freaked out
Happy update first. My hands have finally shown signs of improvement. FINALLY!!!! Here’s a quick look at the comparison of colours (less red) and cracking(no cracks!) flaking (tiny barely-there flakes!!!!). There is still weeping between 3rd and 4th fingers on both hands (hmmm) :
TODAY 17 Jun 2015:
I was so eager to completely heal, and be able to prepare food for my hubby’s birthday and my son’s solids. When I first noted the hands getting better by better everyday, I tried to see if using hand soaps will affect me. Only one try and I got bubbles popping out. Sigh. Have to wait a while more.
As for the elephant skin, guess they will be there for around 3 years or so. Little inconvenience, just ugly to look at.
Legs are continually improving as updated in my previous posts. The oozing is so much less. When it shows real complete healing, I will do the progress pictures like those for my palms above.
I realised I never noticed when my red sleeve went away…. hmmmz.
And so I thought this post would have just been a “good news post”.
Alas, when I started arranging meet ups with some friends whom I have not seen for the past year, I noted tiny red dots appearing across my face. I was thinking, so the limbs are healing, and the next is the face. I dismissed it as a TSW natural progression, although I was afraid how oozing is going to be for my face and scalp. Then I really can’t see my son at all.
But these tiny red dots…… quickly became bubbles, like cold sores. These cold sores break on their own and form CAVITIES in the FACE!!! HOLES!!!!
RED BLOODY HOLES. And they hurt BAAAAAADDDDDDDD. Such sharp deep pain its unbelievable.
And it spread, REALLY QUICKLY. I freaked out.
These changes took day by day. Just days! I posted on Facebook on 15th Jun 2015 with my pictures and immediately 1 warrior recognised it as Eczema Herpeticum. I remember many warriors have been warning about infections such as Staphylococcus Aureus, and Eczema Herpeticum. I remember one of which can be fatal.
The morbid part of me started to think “everyday in bath, I asked to be taken away if there is no end to this stinging, tingling, prickling, oozing, flaking and horrendous itching….. maybe this is the answer….”
Many others say to check diagnosis with GP first. Next morning, with much fear, I went to a GP. Acting with much guidance from a healed warrior’s caretaker (Olive) and the lady who started Singapore TSW awareness (Grace), armed with names of the possible diagnosis and needed treatments, I spoke to the GP. He noted the Eczema Herpeticum cannot be assessed by a GP of his level, that I must proceed to a dermatologist at National Skin Centre (NSC) / hospitals. With a frantic voice he urged “Go now, do not delay, just go the A&E say you need immediate attention for possible herpeticum, they will know what to do.”
With the GP acting this way, the more I freaked. And so I rushed to the A&E of Tan Tock Seng, which I know is affiliated with NSC, to get a diagnosis and referral. The TTS doctor said it is no doubt Eczema Herpeticum, and recommended to be hospitalised. I noted financial reestraints and signed a “refusal for admission” form. Went to NSC which 2 doctors further confirmed right away that it is herpeticum, strongly urged me to be hospitalised. The senior doctor remarked “It has spread to eyebrows, eyelids and below the eye….. definately there are risks for eye infection….. financial concerns vs getting blind…. hmmmmm”.
Ok I got it!…… and was reluctantly warded. Besides financial concerns I was pretty upset with the TCM sinsehs who have just seen me the morning before. Why was it they could not recognise obvious signs of such serious infection? I am baffled. Then, fury got me for the amount of monies I paid them for treating me….. and this stage I get to. They have previously kept assuring me their herbs will guard me against infection and also lessen inflammation. I guess the herbs do not work on me?
Every step of the way that day, sweet sweet Olive was so supportive with guidance on every decision made and positive remarks, SMS me constantly for 4 hours. I must hug her in person one day. Who else but a ex-warrior and their caretakers can be in a better position to advice me? Grace and Olive guided me with nothing in return. Just because we are in TSW together. How beautiful these kind people can be.
Once I was admitted, blood was taken. It was so difficult for the Medical Officer to find my veins with my elephant skin. Luckily she was experienced enough to try only twice. As it was noted I have taken chinese herbs for 10 months, they needed to test for liver and kidney failure. I was clear. Then they tested for malnutrition due to the elimination diet I was doing. I was iron and potassium deficient. My lymph nodes noted swollen, staph infection was also present. Started me on Acyclovir drip, Clarithromycin pills, every 6 hours of high dosage. Also pills for the iron and potassium deficiency, anti histamines, saline compress on the face, anti bacterial creams, double-pyjamas wet treatment with paraffin, etc. Seen the eye doctors today to confirm my eyes are not infected. But to note for one ulcer at the lash line, if the eye starts giving pain or blurred vision, to alert the eye doctors again.
At the moment, I am not taking in the drugs fast enough. The skin doctor tried to convince me to take steroids to speed up the healing, to which I am adamant not to waste my 11mths of TSW hardwork. I in turn tried to convince her of the improvements I have seen without steroids. So now every morning, we try to brainwash each other. Two can play the game. Hahaha
From anticipating to be able to cook for my family soon, to not being able to see my son for at least a month, my mood swings from one end to another. I just hope my body takes in the anti-biotics faster so I can be discharged sooner. How many days more at this creepy colonial housing hospital room???? Eeekekkk