- Itchiness: Ok
- Flaking : Excessively its scary!
- Burning skin: Ok.
- Redness: Ok.
- Soreness : Painful.
- Weeping skin : The folds behind the knees, thighs, neck, groin
- Mood : Depressed.
Didnt update for the last 10 days but mainly its been: oozing, itchy, more itchy, super itchy, very painful, splits, cracks.
As I flipped in the bed again another sleepless night last night, feeling really frustrated and upset and scratching, I was thinking that the big pharmas should really really compensate us.
It is through no fault of ours but we are REALLY suffering.
I mean, see Isaiah Quinn‘s parents, they have to quit their jobs to take care of Isaiah full-time. Felicia Josephine from Facebook Go Natural Health Champions Support Group took 10 months no pay leave. Some stopped school for a year. I took no pay leave for a year.
On top of that, we spend much on supplements, expensive TCM and organic skin care, used extensively to tide us through the difficult TSW.
So that’s loss of income and increased expenses for us. In a country like Singapore where living cost is super high, loss of income is a HUGE impact. Who’s gonna compensate?!
Suffering not measurable by $ is much worse:
The pain, the discomfort, being house-bound or even bed-bound, the crazy body temperatures, feeling dirty all the time, not being with loved ones, missing my darling son’s only once milestones, loss of sleep, being slower in response, depression, feeling of hopelessness, trouble caused to TSW caregivers. etc.
New pictures update. The ooze from behind my knees:
Yes, at the moment my arms and hands are the worst hit. The red sleeve is always there from day 3.
How will anyone be able to compensate for this?!?!
From somewhere I read, 6 lawsuits were raised against the big pharmas for TS but none successful. 1 reason was that the effects are reversible (huh?! NOT!!!) and that there are far too many big pharmas to sue against. I don’t accept these as reasons, I still feel the pain of TSW is far too intense to have no acknowledgements from the ones who caused all the suffering. It’s not as intense as childbirth, but its like the beginning of it. And it is prolonged to beyond 2 years for many.
Feeling life is so unfair. Why me?